Medical Information and Clinical Trials
Here is a list of sites that we found useful.
Medical Information
ABC2 (Accelerate Brain Cancer Breakthroughs)
Our mission: To invest in research aimed at finding the fastest possible route to a cure for brain cancer.
And within that site, this was a particularly helpful page as a starting place:
http://abc2.org/guidance/10-steps
“ABC2 (Accelerate Brain Cancer Cure) is here as a friend and teammate to help you think through this scientifically complicated and emotional process… We curated this resource from leading research and support organizations in the brain tumor community, as well as patients who gave first-hand accounts of their experiences living with brain cancer.”
This link provides yet more resources you may find useful.
http://abc2.org/guidance/resources
American Brain Tumor Association
The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis.
http://www.abta.org/brain-tumor-treatment/
National Brain Tumor Society
We are committed to improving the lives of all those affected by brain tumors.
http://braintumor.org/brain-tumor-information/
WebMD
WebMD has a full section called the Brain Cancer Health Center.
https://www.webmd.com/cancer/brain-cancer/default.htm
Cancer Support Community
So that no one faces cancer alone.
“As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC), including its Gilda’s Club affiliates, is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. CSC achieves its mission through three areas: direct service delivery, research, and advocacy.”
https://www.cancersupportcommunity.org/
Clinical Trials
People with an illness or disease take part in clinical trials to help others, but also to possibly receive the newest treatment and to have added (or extra) care and attention from the clinical trial staff.
ClinicalTrials.gov
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Explore 260,080 research studies in all 50 states and in 201 countries. ClinicalTrials.gov is a resource provided by the U.S. National Library of Medicine.
NIH.gov
The NIH Clinical Trials and You website is a resource for people who want to learn more about clinical trials.